About three months ago I found out that my brain tumour had come back. The odds of this happening are one in 7,500,000. As my brain surgeon said to me, “Wow, that makes you pretty special you know.”
You will appreciate that this news was a bit of a blow because I’ve had seven years of relative freedom, and it has taken me most of that time to retrain my face to work again from completely paralysed to semi-paralysed. It has also taken me a long time to cope with the change in my face. Like many women, I’m rather vain.
Indeed, until Richard started photographing me and I embarked on the nude modelling experience, I felt pretty ugly. Through art-nude photography, I have learned to feel beautiful again.
This time around, the tumour is inoperable. It is currently growing fairly slowly, and my brain surgeon offered me the choice of radiation treatment now, or waiting a year. I have decided to “suck it and see” for a year, and see how fast the little critter is growing before they zap it with high-density gamma-knife radiation.
The radiation would stop it from growing further, but (here’s the rub), it would result in certain and complete paralysis in the right side of my face. Basically I would become a drooling wreck, unable to eat, swallow and with further side effects too numerous and gory to mention (don’t wanna depress you guys so shortly into the new year).
I’m not scared of the tumour….I came to terms with that years ago, so emotionally I am completely O.K. with the whole brain tumour vs death thing, although I do occasionally succumb to the odd moment of mortal terror. Even we alpha females have our weak and snivelling moments.
The recent emotional distress on my part was because, after radiation, my face would not be photogenic (understatement of the year), and this would be almost certain death to my modelling career.
O.K. you say, surely certain death to your modelling career is better than ….er…...certain death ?
The trouble is that Rich and I have been completely absorbed by the whole art-nude photography lifestyle. We are (touch wood) making new friends, creating cool pictures, and we are happier now that we could ever have dreamed of. I do not want to give that up. I love being a model, even if I am a bit old and semi-paralysed. I love being in front of the camera and creating Art (at least in my eyes it’s Art!)
If I have the radiation and the side of my face collapses, I won’t want to be within 2 miles of a camera, and I sure as hell won’t want Rich spending many hours with gorgeous young naked women whilst I look like a deformed product of a horror movie (you should see the piccies after my last operation).
I would never ask or want Rich to give up the nude photography though (he has offered many times), but I would be nervous about meeting models after my treatment (I can’t stand people feeling sorry for me, plus I would certainly scare them). So potentially I would opt out of the whole photography scene…..not good news for the shared passion for our new hobby, business or our relationship.
So for now I choose to wait before treatment, to give myself a “last blast”. I have possibly about 8 months left in which to cram a life-time’s modelling. I intend to use that opportunity to enjoy myself in front of the camera as much as I can. I do not have the option of “taking it slowly” or sticking to my
comfy bear zone. I have to push my boundaries of modelling as hard as I can, right NOW!
What happens to Fluffytek long-term is anyone’s guess. I have been playing with the idea of fetish photography, particularly specialising in weird masks, which might be a potential solution to the facial deformity issue, and I think masks are extremely cool anyway.
But in the meantime, let’s live the next year as if it could be our last, and create some bloody good Art in the process!
Apologies for the grim blog post folks! Time to make you smile with me giving the finger both to cancer and to my personal comfort zone!

Note the shiny new Fetish shoes which Santa brought me! Thanx Santa!